Medical Record Retrieval and Organization for Research Foundations and Clinical Trials
Unlocking Vital Medical Information for Breakthrough Research Get StartedBook A CallChallenges in Research and Clinical Studies
Research foundations and clinical trials often need retrospective medical records, especially for genetic diseases. Verifying participants and acquiring comprehensive records can be challenging, slowing research progress, especially when participants are globally dispersed.
Our Solution
We specialize in retrieving and organizing medical records, bridging the gap between families and research foundations to deliver the essential medical information needed for breakthroughs.
Streamlined Participation and Access to Medical Records
Enrollment
We collaborate with families post-registration to secure authorizations, including guardianship and next-of-kin documents, through easy online registration or personalized assistance. Our process ensures seamless medical records retrieval using the HITECH process in the U.S. and complies with relevant regulations abroad.
Records Verification and Sufficiency Testing
We verify records to ensure they meet protocol requirements with confirmed diagnoses, saving your team extensive screening time.
Organized Medical Records for Research Efficiency
Our medical records organization system enhances usability by converting medical information into a unified database.
Indexed and Organized: Records are categorized by provider, events, and disease progression.
Track and Analyze: Track providers, visualize treatments, and analyze disease progression and medication effects.
Advanced Analytics
Custom medical probes identify key conditions, symptoms, and diagnostics.
Medical records are prepared for advanced analytics, enabling timeline analysis and multi-patient comparisons. Exportable formats include Excel, CSV, and JSON.
HIPAA Compliance, Secure Access, and Record Management
We strictly adhere to HIPAA regulations, ensuring patient confidentiality. Only authorized family members with consent can access records, retaining full control over sharing medical information with researchers.
Records are managed digitally, securely stored during the project, and permanently deleted after the agreed timeframe to ensure privacy.
Partnering for Progress
Gain access to comprehensive, organized medical records, enabling you to:
- Screen participants more efficiently.
- Access medical records that accelerate research.
- Expedite outcomes in your study.
Success Stories
We are presently supporting research on Canavan disease with BridgeBio and Mucolipidosis Type IV with the MLIV Foundation.
